Anti-Me

I have had Hashimoto's Thyroiditis for about 10 years now. It is an autoimmune  thyroid disease that causes my body to believe that bits of my thyroid are actually invading aliens and to destroy them like the ground lasers explode the descending aliens in Space Invaders. This results in hypothyroidism that is treated with daily meds to replace the missing thyroid hormones.  Except for the infrequent times that my meds got out of balance and my dosage needed to be changed, this has had very little effect on my quality of life. As diseases go, it is a relatively simple and painless one to deal with.


However, it seems that once your body misfires and destroys self instead of real invaders, there is a much higher probability that it will do it again. Incidence of other auto-immune diseases gets much higher, I am told, after the first.  This is one of the reasons that Myasthenia Gravis ( MG) is a leading contender for my current muscle fatigues and blurry vision.  In this case my initial blood tests came back within the normal ranges for the AchR ( Acetylcholine Receptor) antibody which is the most common cause of MG. It is possible to be seronegative and still have MG ( although personally I am suspicious that this is the medical community grouping like symptoms together without understanding cause and just calling it the same thing), but it also then leads to testing for less common forms of MG- the MuSK ( muscle surface kinase) antibody and the Voltage Gated Calcium Chanel  Antibody. They took  the blood for these two tests last Wednesday evening ( Nov 3), but it will take us a while longer to get those results back.  In a game of medical economics, the rarer the disease the fewer labs do testing for it. Those blood results got sent by the hospital reference lab to two separate labs for processing.  Again, we wait for results to decide what to do next- I think this is where they would insert a commercial in a House episode... or just assume that there was conveniently a kit in the basement lab to run exotic diagnostic tests to get results more quickly.

Waiting

“Waiting is painful. Forgetting is painful. But not knowing which to do is the worse kind of suffering.” Paulo Coelho

Today is a phone call day. So I sit here, waiting for my neurologist to call and give me the results of the CT Scan I had on Monday.   This means that a phone goes with me everywhere (yep, even the bathroom) and I am not leaving the house. This is one of the big deal results- up for exploration was both if there are any issues with my thymus ( which would implicate Myasthenia Gravis) or if there are any signs of Lung Cancer, or other cancers (because some of my results indicate Lambert Eaton Syndrome).  I have given up trying to imagine what it will feel like if the Dr has to sit me down and tell me I have Small Cell Carcinoma. It is impossible, even this close to the possibility.

I will post and share some of the CT images ( they are very cool) once I know the official report. Out of self protection, I am not going to post them and have peeps second guessing how to read them. Trust me- I spent 2 hours of my Monday afternoon down that road already and it is both scary and frustrating. Finally you have to say " I know enough to be dangerous and not enough to be trustworthy, so walk away from the monitor". I left the CD with the data in the computer downstairs and have not gone back to that computer since.  My Dear Hubby ( MDH) was much wiser and declines looking at them at all until we have the report.

UPDATE: Call just came in, no thymoma, no tumors in lungs, CT Scan was clean. Doing a bit of a happy dance here. Will share beautiful CT images soon.